Designing a Web-based Registry of Heart Diseases in Pregnant Women in the Northwest of the Iran

Abstract

Abstarct Introduction: Effect of pregnancy on women with cardiac problems and its impact on maternal, neonatal and fetal outcomes is not completely known. Nature of information in this groupe of patients is fragmented. Web based registry can contribute to the information integration. Aim: Aim of this research was to design a web-based registry system for cardiac problems in pregnant women. Material and methods: A list of data elements was extracted through reviewing the related literature and clinical guidelines as well as data set related to ROPAC. After reviewing the preliminary data set by multidisciplinary expert panel, they scored each of the data elements in terms of their necessity and feasibility. They also finalized type of data, their default value, validation controls as well as the reporting requirements. Data base was constructed in MySQL.User interface was designed through using PHP, html, and CSS. In order to evaluate the registry system, the researchers asked the users to assess the system's data entry and reporting sections. Results: overall 48data elements in6 main categories was determined for the data set including demographic data, identifiers of collaborating centers, pre-pregnancy data, hospitalization data in heart center,data related to pregnancy and delivery, data on medication use in current pregnancy. Based on the defined data set, the web based system was designed. Users scored system higher than60% in terms of the system data entry andreporting specifications. Conclusion: This work is the first attempt for creating web-based registry system for cardiac diseasess in pregnancy in Iran.The results obtained from this research can be usefule for research aims as well as improvement of health care services for the related patients. Keywords: Patient Registry System, Web-based System, Cardiac disease, Pregnant Women, Pregnancy