Study of child-rearing practices in parents of children with cystic fibrosis

Abstract

Cystic Fibrosis is a chronic, life-limiting, multisystem disease with a prevalence of about 1/2500% in children. Patients with CF need a strict treatment regimen including daily physiotherapy, medications, and nutritional monitoring. Since the share of primary care for our country's children is provided by mothers, and considering the understanding of the many problems caused by the disease in the families of children with cystic fibrosis referred to the children's hospital, we decided to conduct a study to review the methods Parenting in children with cystic fibrosis. methods and materials: The present study is a descriptive-analytical study. In the first step, after selecting the target population and sample size, the researchers were evaluated using the Barry and Jones Parental Stress Scale and Bam rind parenting practices questionnaire. The collected data were then analyzed for SPSS software. Results: The results of data analysis showed that the mean age of patients in the study group was 9.02 ± 3.44 and in the control group was 7.59 ± 2.39. In the study group, 18 female children (45%) and 20 children (50%) were male and in the control group, 20 female children (50%) and 20 male children (50%). 73.8% of mothers had undergraduate and postgraduate education and most mothers (73.8%) were housewives. The mean age of fathers was 38.64 7 7.03 and most fathers were self-employed (68.8%). The results of our study showed that parents of children with cystic fibrosis have higher levels of stress than parents of healthy children (P <0.001) and Permissive parenting style had a significant relationship with stress levels in these parents (1 P = 0.01). In parents of children with cystic fibrosis, there was a significant relationship between parental stress level and Permissive parenting score (p = 0.01). Parents with low stress levels had higher Permissive scores (inverse relationship). In healthy children, there was a significant relationship between parental stress level and authoritarian parenting score (P = 0.04). Parents with higher stress levels had higher Authoritarian scores. (Direct communication)