Design, Implementation and Evaluation of Intelligent System for the Registration of Acute Rheumatic Fever / Rheumatic Heart Disease

Abstract

There is currently no general agreement on the minimum data set to be collected and stored in the ARF / RHD recording, and existing recording programs have published their own data standards. The purpose of this study is to compile a minimum data set for rheumatic heart disease and design a disease registration system for Iran. Despite this registration, it is expected that a step will be taken to improve the quality of life of patients with this disease and reduce the burden of this disease. Materials and Methods: The system for registering rheumatic fever patients includes a collection of patient demographic information, clinical examinations, possible complications, risk factors, disease burden, periodic tests, examinations and medications used by patients. Results: According to the obtained results, most of the studied children had carditis and polyarthritis from the major criteria and from the minor criteria the most criteria were elevated ESR , positive CRP and high fever. Valve involvement was observed in most children with rheumatic fever, followed by tachycardia and heart murmurs in these patients. In the study of demographic information of these children, the average age of children was 9/22 years, with a minimum age of 3 years and a maximum age of 13years. 64% of children were male, which was twice as much as females. Most children were economically disadvantaged (74%). Most of these children were urban dwellers (78%) and most of these patients were the result of natural childbirth (74%).