Quality of Life in Patients with Major Thalassemia in Boyer Ahmad Townships, 2011.

Abstract

Abstract: Background and Objectives: Beta thalassemia is chronic hereditary disease that–mental effects on the individual and the family leaves. Severe and impact the physical debilitating complications of the disease over time affects the organs and tissues. And reduce the efficiency and ultimately reduce the quality of life. The present study aimed to assess quality of life in patients with thalassemia major offering whom 2011 took part thalassemia in Yasuj. Materials and Methods: Current study is a descriptive -analytical study that on 72 patients with thalassemia center thalassemia Yasuj done. In this study, by using two questionnaires and interviews consist of demographic questionnaire, and Iranian version brief a 36 items quality of life, after collecting the data patients' quality of life was assessed. Results: Data from the study showed that the average age of participants 20.5 ±4.34, 65% female, 26% educated, 96% single, and 40% had mild to moderate changes were apparent. According to the results most relevant to the physical quality of life score, mean 70.4± 24.1 and the lowest mean score on the emotional 55.8 ±33, respectively physical and mental health and quality of life in general, with cases such as education, gender, socioeconomic status, type of follow –up, complications were significantly associated not only with changes in the face and overall appearance and severity of symptom statistically significant p<0.001 showed. Conclusion: The significant components of physical health and overall quality of life in the severity of clinical symptoms in patients with thalassemia, as well as overall quality of life in a mental health component. Especially the emotional and psychological aspects seem to apply proper training and treatment to reduce symptoms for these patients should be considered and provided further rehabilitation and psychiatric counseling for these patients is necessary.