Monitoring of Congenital Anomalies in Developing Countries: A Pilot Model in Iran

Abstract

Aims: This is an ongoing project aiming to establish a monitoring system of congenital anomalies in the Northwest of Iran, and to implement control and preventive tasks in the region. Methods: Our program covers about 15 000 births (average per year) in a defined area with about 350 cases (average per year) of congenital anomalies born in the region. The definition of the congenital anomalies is based on the standard coding system of the International Classification of Diseases according to the primary diagnosis of anomaly. Results: The program examines the rates and patterns of various types of congenital anomalies and looks for possible local causes and influencing factors in the population. This monitoring program provides a pilot model into the epidemiology and potential for prevention and control of congenital anomalies in the community level. Evaluation procedures are essential part of our program to monitor the effects of preventive services for congenital anomalies in order to identify and correct shortcomings. Conclusion: Our program provides some essential data as an epidemiological tool for local investigators, information for health service planners, clinicians and for genetic counselors. It may also help to identify regional interventions that could help to prevent and control congenital anomalies in the study population and similar areas.